Back in January 2025, as part of his Expert-by-Experience role for NHS Sussex, Adam joined the Neurodevelopmental Programme’s Children and Young People Signposting ND Communications Subgroup to contribute to the development of the Partner Toolkit for ADHD and autism help & support for children & young people, their families and carers.
The toolkit, published by Sussex Health & Care in December 2025 after a year of intense development, aims to make children and young people’s ADHD and autism support easier to find.
In the official announcement, Adam, as Chair of the Sussex ND Lived Experience Advisory Panel (LEAP), is quoted as saying:
Our group brought decades of professional and lived experience insights, pored through thousands of data points, and incorporated active input from hundreds of people across Sussex to represent a wide variety of age groups, backgrounds, walks of life, and support needs.
Speaking on the lived experience focus of the project, Adam in his welcome message for the toolkit, writes:
The work comes at a pivotal time as the previous ‘wild west’ of quick-fire social media content is counteracted by a growing number of high-quality neurodivergent resources.
Still, information overwhelm remains the core challenge for people, which led us to the toolkit’s organising principle of balance:
- Covering the full journey from interest, referral and assessment to context-based support
- Providing information for all levels of urgency.
- Demystifying jargon while retaining signposting clarity.
- Having clear entry points and quick access navigation to cater to information processing needs.
- Making language inclusive so that parent carers, as well as children and young people researching the topic for themselves, feel validated and heard.
Importantly, the toolkit remains a live document. We’re keeping tabs on new and emerging resources as this field further develops and will be conducting quarterly reviews to make sure the toolkit is always kept up to date (if you come across new resources that should be included in the next version of the toolkit, please do let us know!).
You can read the full news article here.
And if you’re in a position where you provide signposting information on your website for ADHD & Autism resources within East Sussex, West Sussex or Brighton & Hove, you’re encouraged to update your website with the latest version of the Toolkit.
Adam was a guest on Tana Tours